Category Archives: Random Musing

Conversations with My Mother: Things I’ve learned from Rosie

My mom died in the amazing Dorothy Ley Hospice on Saturday October 9th in the late afternoon. It was a brilliantly beautiful fall day and she had her family by her side. Dorothy Ley lies somewhere just outside Port Credit where my mother lived and Sherway Gardens, Rosie’s favourite mall of all time.  My mom once said of a friend’s house in Kits, “This is nice but where’s the mall?”

I feel as though I have been on a journey with my mother. At first I thought it was the journey of these past few months but now I realize that it has been a journey of a lifetime. Sometimes it’s hard to see our mother’s as people or as anything outside their roles as our mothers.  But now when I try and disentangle myself as my mother’s daughter I feel like I can better understand the quirks she developed as a result of some of the hard knocks she had to take in life.

My mother married twice. Both times she married men who liked to take things from her. Her children, her safety, her children’s safety, her things, whatever she had they wanted and they took without asking or without scruples. Abusive men will change your life and the life of those around you forever if you give them the chance.

When husband number two left my mother high and dry it was the best thing he could ever have done.  My mom never was allowed to work but suddenly at the age of 43 she had to figure out what she could do. And she did. She cleaned houses and eventually she took care of other people’s children.

I don’t think in all the years of knowing my mom she ever complained of the things she had to do or the things she didn’t have. She just did it. And when we had a particularly good meal  she always looked at me with a mischievous smile and say, “If only everyone could see us now!”

Eventually my mom got a job at Eaton’s where she worked at the accessories counter for 10 years. She loved that job. Always a clothes horse, she would get dressed up, make her lunch and off she’d go to have coffee with the girls before work.

There is no doubt that my mother had her quirks. She was brutally honest, sometimes unkindly so and she could have a hard edge. She could make a dollar stretch like nobody I know because she had to.

Sometimes even in the last few months I had this idea that my mother didn’t live her life to its fullest potential. I felt badly that she never had another partner or that she wouldn’t take risks or adventure far beyond her beloved apartment in Port Credit. It upset me that television had become her world (especially Dancing with the Stars and the Olympics!)

If you asked her she would wave her hand and say “What for? Why would I want anyone in my life? They’d make me cook and clean. Forget it. I’m happy. Tessie, I’ve lived more than you would ever know.” I guess the thing is I heard this but I didn’t understand it.

In the last few months my mom would look at her place and say, “Isn’t this cosy? Don’t you love all the pictures and all the things in here. I love this place. I love Port Credit.”  My mom lived in her apartment on Lakeshore Road for 40 years. Once she managed to escape the craziness of life with husband number two she decided to build a life for herself where nobody could take anything away from her. Where she could feel safe. Where she could have peace and be happy.

It was from this safe place that my  mother executed her witticisms and divined her essential Rosiness.

  • I’ve learned from my mother to take from life what you can.
  • To keep laughing in spite of it all.
  • To be silly and laugh even through the worst of it.
  • To love the people around you.
  • To give even if you don’t have much.
  • To not bemoan what you don’t have.
  • To not let lack of money ruin your sense of peace.
  • To create your own safe place.
  • To understand that there is nothing about dying that is undignified.Whatever the cruelties that old age and sickness impose on you, they have nothing to do with dignity.
  • That regardless of anything Rosie’s amazing spirit shone through adversity and kept us laughing and on our toes until the very end.
  • That just being there and holding someone’s hand is the most important thing in the world.
  • That old age never compromises a mischievous fun-loving spirit.
  • That when you look at older women understand that they have lived every age and their entire being is comprised of that. They have been daughters, sisters, lovers, wives, girlfriends, adventurers, nurturers. They’ve loved and they’ve lost.
  • That love can make you do things you never thought you could.
  • I  believe that Rosie’s spirit lives all around me and is a part of me.

I hope that wherever my mother is, it’s as peaceful as 371 Lakeshore Road West, Port Credit.

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Conversations with My Mother: Every Moment Counts

The conversations I have with my mom these days are changing rapidly because her ability to speak is decreasing daily. We all in our own way wait for those moments to arrive when my mom’s personality is able to emerge through her illness and medication. All of us have different ways of being with her. My brother likes to make her laugh and hold her hand, one of my sisters works hard to make sure she is comfortable, my other sister made sure she was fed throughout the day and had lots of magazines to read when she was still home.

I don’t seem to be able to make my mom laugh and I’m not particularly good at care taking although I can do it. My speciality is to sit and hold her hand.  Yesterday was a glorious day here in Ontario. My mom has a huge window in her room that looks out on trees that are changing colour. I sat and held her hand as we watched the wind blowing the leaves here and there, the birds gathering around the bird feeder. Autumn couldn’t have been more spectacular than it was at that moment.

Sometimes I can feel her press my hand a little harder or shake it when she hears music she loves. I press back  to say that I really like that music too.

Just when we were both dozing off a volunteer came in and asked if either my mother or myself would like therapeutic touch. I asked my mom what she thought  and she said, “Are you kidding me. I’m half dead. Too old for that nonsense.” I looked at Lynn and said I think my mom said no. I giggled because that is so typical of my mom. Then she looked at me and said in her almost non-existent voice, “Don’t you have anything else to wear?”  Ahhh forever a mother.

Just as I was ready to leave for the night and I thought she was dead asleep she opened her eyes wide and said in Dutch, “You know what I feel like having?” and I said “What?” “An ice cream cone. Strawberry, chocolate AND vanilla.” Wow” I said, “well you haven’t eaten in a month so you must be hungry.”

So it comes down to this. And maybe this is what Morrie Schwartz was trying to say  when he said that once you understand how to die you understand what it is to really live. Watching my mother die is as close to dying as I have ever been. And I think what he means is this. The apartment that my mom has loved so much for the last 40 years and all the lovely things she has collected to make it her home are now meaningless. The clothes she loved to buy no longer matter. The car she loved so much isn’t even thought of. The only thing I think she cares about are the people she loves and having them around her. She wants love. And love is the only thing that we can give her that matters.

Dorothy Ley Hospice to date has been an amazing experience. They understand that comfort and love is all that matters at this point in life. I don’t understand why the government would cut their funding…..

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End of life care decisions: Dorothy Ley Hospice

It was very difficult for us as a family to realize that we couldn’t care for Rosie at home. The truth was that the idea of caring for my mother at the end stages of her illness  was for most of us a scary prospect both emotionally and physically. And yet for me that wasn’t the absolute deciding factor.  After talking to a wonderful social worker called Cathy Mahuran we realized that there were things that were going to happen to my mother physically as a result of her illness that would make it a challenge for us to keep her as comfortable and as safe as possible.

Responsiveness to pain management and the ability for my mother to be able to undergo paracentesis (fluid drainage) once or twice a week to keep her comfortable were all deciding factors.

Truthfully bringing Rosie to longterm care was probably one of the most difficult things we have ever done. My mom who is extremely mentally alert was all of a sudden confused and terrified. She couldn’t figure out where she was or why, she kept asking us how she got there and how would she know how to get home and worst of all she was terrified of the personal care workers. Even though we met some amazing people at McCall Longterm Care (particularly nurses and social workers) the fact that she was afraid made it hard to leave her there.

We heard that because she was already considered to be out in the community that her chances of getting into a hospice were very small. Even so we kept her name on lists and worked with the social workers and coordinators to make sure they understood how important it was to my mom and us that she be in an absolute quality end of care facility. Short of being accepted at a hospice we would spend as much time with her at the facility as we could.

I’m not sure how it happened but the day before yesterday we got a call that a bed had become available at Dorothy Ley Hospice. As soon as we arrived I think we all had a collective sigh of relief. The surroundings are beautiful and the are staff absolutely amazing. Rosie deserves to die in love and comfort. Thanks to all the people who volunteer their time so generously to hospice care, to the fundraisers and staff who make these jewels a reality.

“Spiritual care lies at the heart of hospice. It says we are here. We will be with you in your living and your dying. We will free you from pain and give you the freedom to find your own meaning in your own life – your way. We will comfort you and those you love – not always with words, often with a touch or a glance. We will bring you hope – not for tomorrow but for this day. We will not leave you. We will watch with you. We will be there.” Dr. Dorothy Ley

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Conversations with my mother: Laughing our asses off in spite of it all

Well, these are not easy times in my family’s life. Rosie has terminal cancer and has been moved to longterm care until we can get her into a hospice. For now we have made her place as cosy as possible with flowers, pictures and us! It is the oddest thing but amidst all of this there is as much laughter as there are tears.

Rosie has never been one to mince words and this is true now more than ever. Yesterday we hung out and giggled and laughed our arses off. It wasn’t easy making the decision to leave her in longterm but we are making the best of it by giving her endless love. . I already have so many incredible memories of this ridiculously hard time.

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It Gets Better: Dan and Terry

This is a video that a friend posted on facebook. Dan Savage and his partner Terry  are featured in this video talking about the trials and tribulations of surviving high school as gay youth.  This project is intended to reach out to LGBT youth who are bullied and to help them believe that life can and does get better. It Gets Better is really sweet. Pass it on.

“If you’re gay or lesbian or bi or trans, and you’ve ever read about a kid like Billy Lucas and thought, “Fuck, I wish I could’ve told him that it gets better,” this is your chance. We can’t help Billy, but there are lots of other Billys out there—other despairing LGBT kids who are being bullied and harassed, kids who don’t think they have a future—and we can help them….”

READ MORE about the It Gets Better Project, in Savage Love, here: http://bit.ly/bYtxBd

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Dying isn’t for the faint of heart

The truth is that dying hurts. It hurts for the person who is dying and it hurts for the people around that person.  I’ve learned that it’s hard watching the body of a person with an alert, active mind, slowly fall apart. I don’t know because I haven’t experienced it first hand, but I imagine it’s equally as hard to watch someone lose their mind to illness. It doesn’t matter if you lose someone who is young or old, loss possesses a unique sorrow for each and every one of us.

It’s true what they say…that you go through stages. From the time I could first remember I dreaded the thought of losing my mother. I swear I used to worry about it in bed when I was eight years old and I would pray to god that nobody in my family would die. And then I would list all of their names and if I missed anyone  I took that as an omen of doom. I was prone to suspicion as a kid and these thoughts plagued my small mind.

Now years later that I’m faced with it I’m thankful for the stages…because they’re true. I think you have these stages because letting go of someone is a process. It forces you to focus on now. More importantly it forces you to focus on your heart and your mind.

I am visiting my mom right now in my old home town where I grew up. She stayed and I left. This is something I think about a lot. When I wander around at night after visiting her in the hospital I feel the memories of this place where I grew up collapse into a single evocation of so many moments and feelings in my life. I feel the past pulling me as hard as the present.

My mom says to me that she likes to be with her memories. I wonder if this is her way of letting go.

The thingI like about her at this stage in her life is her honesty.  I like very much that she talks directly about dying. About the things she is facing. About the finality of her life. About the fact that she just isn’t into this anymore.  I don’t know if this is courage or just the honest truth spoken plainly by a dying woman. But I feel it is helping to prepare me.

The other things I worry about are that people won’t see beyond her body. That she will be consigned to the invisibility of old age. I want them to see the rich life she has led. Her sorrow and her joy. Her love and her broken heartedness. The young dutch girl, the married woman, the mother, the wife, the friend the dancer, the harmonica player, the laugher, the prankster.

That’s what I worry about.

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Chris Hughes:Building a Social Network for Non-Profits

Watch this. Chris Hughes gives a presentation on the importance of building a social web with ‘soul‘.  The next social space he is building is called Jumo an online space where people and organizations working for social change can build long term relationships.

Chris Hughes is the co-founder of Facebook, and was the director of social media for the Obama campaign. He’s only 26. “Wow” as my mother would say.

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Women, Food and God by Geneen Roth

Well, this is an interesting book and certainly one that I could have used during my turbulent teens and twenties.  Geneen Roth is a former compulsive eater turned writer and mentor who explores the relationship women have with food.

Through explorations of her own journey as well as many of the women in her workshops she  not surprisingly discovers that people’s behaviours are often locked in the wounds of childhood.

The self-punishing and relentless cycle of binge eating represents the double-edged sword of momentary oblivion followed by self-hatred and recrimination. “If only I could be thin my life would be perfect.” “Once I get down to a size 10 everything will be good.” And while many will find themselves reaching these self-inflicted goals it’s often done in such an unhealthy way and without the true self-discovery needed that the cycle starts all over again.

Roth explores the idea that healthy weight loss isn’t about weight loss at all. It’s about untangling the emotional wounds of the past that prevent us from self-love . Learn to love yourself and everything else will follow seems to be the lesson from this book. Although Women, Food and God deals specifically with compulsive eating, I suspect that this book could appeal to anyone with addiction issues.

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Because I love lists… 25 more things about Rosie

Rosie:

1. loves Dancing with the Stars.

2. loves attention.

3. loves to dance.

4. met her best friend Aggie in high school in Holland. They still are best friends.

5. and Aggie sing Dutch songs together and talk about how Aggie met her Canadian husband after liberation in a dance hall.

6. used to roller skate with her girlfriends.

7. loves to cook.

8. loves President‘s Choice Apple Blossoms.

9. loves to walk with her head up to the sky humming as she goes along.

10. values her independence.

11. gave up on marriage.

12. has cancer.

13. likes going to the movies.

14. said wow many times while watching Avatar with me and Dave.

15. wore a pretty red shirt and lipstick when Dave arrived.

16. can be very particular about things in her house.

17. used to like being alone but doesn’t anymore.

18. is a flirt.

19. can be very sweet and funny.

20. can be very direct in an uncomfortable way.

21. loves shopping.

22. is friends with Dave.

23. loves watching sports on TV.

24. having fun.

25. really digs her purple socks.

26. can’t stand Olive our cat (but she doesn’t really know her well enough.)

27. loves her children.

28. can’t buy enough hand bags.

29. thinks Obama is very cool.

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Candida Sucks

Fine Wine

Image by xueexueg via Flickr

I know when I’m telling people I’ve done a face plant on a plate of exotic French cheeses like Cambenzola and St. Andre’s Triple Cream (I’m usually still laughing at this point)  that I’m in deep trouble and way off course from my IBS anti-candida diet. Throw in chocolate covered strawberries, a renewed love for pasta and tomato sauce, fine wine and barrels of orange juice to get me through the summer heat and I know that yeast is starting to multiply by the gazillions.  Tick tock tick tock. Candida is moving in like the Germans taking over Poland.  It’s pure evil. Sensitive eco-systems like  my stomach can’t live like others do. Sad but true.

I tell myself that I only did two or three faceplants (ooohh I forgot about that tasty meringue and chocolate cream concoction from Capers) but the fact is that if you have IBS and if you are prone to  candida then you can’t eat like other people. How often do I actually have to remind myself of that?

So how do I know when things are going astray? Well for one thing it’s easy to compare the times when I feel great and the times when I don’t. And when I’m not feeling great a visit to my naturopath confirms what I already know.

The first sign is my stomach. It’s sore (literally) and swollen. I’m tired and can’t sleep, I have crazy sugar cravings, I’m anxious, my body hurts and  I have itchy patches of skin.

So how am I going to solve this? Well I’ll solve it by a) not drinking alcohol b) not having any sugar, for example:  cakes, cookies, muffins, fruit juices, honey, maple syrup c) avoiding carbohydrates like pasta, rice, flour unless it’s whole grains and brown rice d) no dairy e) I’m going to the store to buy some probiotics to help the process along.

I’ve been here before and being a lover of great food, my guess is I’ll be here again but for now I’m looking forward to feeling healthy again.

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