The only way I was able to figure it out was to do an elimination diet for a few months. I worked with a naturopath. For the first few months all of the following were eliminated:
processed meat
beef
lamb
all dairy product
wheat, spelt flour, kamut, (I ate rice bread and pasta which is okay)
no caffeine, alcohol, chocolate, or sugar whatsoever
no fruit juices.

I could eat fruit, vegetables, rice and rice pastas & breads, fish and chicken (but I don’t eat chicken so just fish).
Slowly I introduced one thing at a time – so I tried Kamut flour and I was fine. Then I re-introduced goat dairy (cheese mainly) and I was also fine.
Then I re-introduced caffeine and I was also fine.
The things I wasn’t fine with were: anything to do with wheat (including soya sauce that has wheat in it as do many other off the shelf products (read everything!)
My diet now consists of eating:
kamut and ocassionally spelt flour but mainly kamut and rice products (flour, pasta, bread)
One or twice a week I have goat cheese.
Once or twice a month I have cow dairy and I’m also fine.
I drink on the weekends.
I stay away from sugar because it causes candida and yeast growth.
I eat all veggies, quinoa and mostly unprocessed food. I keep it as simple as possible.
Now I feel great. You can feel great too. I would work with a naturopath though and a doctor you trust to help you get to the bottom of your symptoms.
Dont’ hesitate to drop me a line if you have any more questions! Good luck!
Tessa

I could empathise with every single thing you wrote. My symptoms get so bad sometimes I’d come close to having a blackout. I’ve been on a few drugs namely Omeprazole, Domperidone and a tranquilliser called Librax. I’ve also tried to be good and not take any alcohol, caffeine, dairy products and glutinous rice. On some days I feel normal but on most days I wish I could curl up and die. Seeing that I’m only 21, it’s a pretty morbid thought to have! I’m glad your diagnosis and diet has helped you feel better – would you mind sharing a comprehensive list of the food you’re avoiding? I’m so desperate to feel better I’ll give up bacon if I really have to.

Cheers,
Evangeline
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